Events

Nov 2025

EEG Data Integration Strategy Defined

UCLouvain — ICTEAM

Following participation in the COST CA24161 Management Committee, a strategy for EEG data integration into CLINOM-X was defined, adopting DICOM WG-32 and BIDS standards, aligning metadata with COST recommendations, and leveraging the Orthanc ecosystem for EEG data addressing from OpenMRS.

Oct 2025

Rare Disease Diagnostic Pipeline — Accepted at MIE 2026

UCLouvain — ICTEAM

A rare disease diagnostic pipeline was developed, leveraging HPO/Orphanet annotations within a Noisy-OR probabilistic model. Evaluated on 300+ clinical cases, it achieves a Top-3 accuracy of 56.2%, competitive with current state-of-the-art tools. The work has been accepted at MIE 2026.

06 Oct 2025

COST Action CA24161 — First Management Committee

COST Association

Participation of the CLINOM-X project promoter in the first Management Committee of COST Action CA24161, in connection with the integration of neurophysiological data (EEG) into the CLINOM-X platform.

Jul 2025

OpenMRS Confirmed as Technological Foundation

UCLouvain — ICTEAM

OpenMRS was confirmed as the technological foundation for electronic data collection, offering concept-oriented modelling, configurable forms, and REST/FHIR interfaces. A Java REST client is under development, already supporting full management of core resources (Patients, Visits, Encounters, Observations, Concepts). FHIR integration strategy defined: QuestionnaireResponses stored as JSON within OpenMRS Observations, and Questionnaires as Concepts, with UUID-based alignment.

Apr 2025

Extended Analysis — Ontologies, Phenotype-Gene Linkage & Test Dataset

UCLouvain — ICTEAM

Continued analysis with three additional requirements identified: integration of standardised ontologies and vocabularies; phenotype-to-gene and gene-to-phenotype linkage (the database now holds over 640,000 such links); and construction of a shareable test dataset of 300+ realistic rare disease clinical cases with formalised clinical and genetic data, supported by HPO annotations linked to OMIM, Orphanet, and Decipher.

Jan 2025

Platform Analysis Phase — Core Requirements Identified

UCLouvain — ICTEAM

Analysis phase for an open, standards-based platform for managing clinical, medico-technical, and omic data in clinical research. Core requirements identified: user and role management, research project tracking, data collection instruments (using a two-level archetype/template model), dataset management with open metadata, authorised access and visualisation, import/export in CSV, Avro, Parquet, FHIR JSON, and OMOP formats, and a REST API for external integration.

01 Mar 2024

INAH Working Group — Institute of Analytics for Health

Wallonia, Belgium

Participation in the working group for the creation of the Walloon non-profit organization INAH (Institute of Analytics for Health).